The workshop is organized within the framework of the European project EUROMAC, a European registry for McArdle Disease and very rare muscle glycogenolytic disorders. The EUROMAC workshop aims to improve the evaluation and care of people with McArdle disease.
Events
Pompe Disease robs us of our physical strength and abilities. But despite our physical weaknesses, I believe that we have a great strength as a Community. As a united community of patients, family, friends, physicians, scientists, and industry we have an undeniable strength.